We are committed to actively involving patients and the public in our research.
Patient and public involvement (PPI) in research is research that is carried out ‘with’ or ‘by’ patients and/or members of the public rather than ‘to’, ‘about’ or ‘for’ them.
At the MRC CTU this includes welcoming patients as members of trial steering groups and asking them for comments on patient information leaflets. It also includes consulting them about particular trial proposals. We have patients sitting on groups and committees where appropriate, for example our Trial Protocol Review Committee.
'Patients and public'
We use the term ‘patients and public’ to include current, former and potential patients, carers, people who use health and social care services, and people from organisations that represent people who use these services. In some of our trials we have also involved trial participants in active roles.
The benefits of PPI
There are many types of PPI which can be used beneficially at all stages of a trial from its inception and design to making the results known.